The Blind Life Podcast

Finding reliable treatment information after a vision impairment diagnosis can feel overwhelming. Nome uses AI and a patient’s clinical diagnosis to identify potential treatments, medications, and other options that patients can discuss with their doctors. In this interview, Nome CEO Stevie Ringle shares how his own vision journey inspired the organization, explains how the service works, and reveals the interesting story behind its name.
Learn more about Nome: ► https://www.nome.bio/
Solving Rare YouTube channel: ► https://www.youtube.com/channel/UC7sRsn5UGalqbW4GrQjt0ug
#VisionLoss #VisualImpairment #EyeHealth #ArtificialIntelligence #TheBlindLife

Accessible story time should be available to every family. In this video, I introduce Inside Ability Books, a collection of children’s books featuring large print and high-contrast designs for readers with low vision. I also speak with founder Krystle Boateng about how her own frustration with finding accessible books to read to her children inspired her to create a better option.
Website: https://www.iabilitybooks.com/
#AccessibleBooks #LowVision #ChildrensBooks #BlindParents #InclusiveReading #Accessibility

Welcome back to the Audiobook Club! In this episode, I'm joined by my wife Rachel and our good friends Myrna and Dan as we dive into the wildly entertaining Dungeon Crawler Carl series. We share our favorite characters, discuss some of the most outrageous moments from the books, and talk about why Jeff Hays' incredible audiobook performance has made this one of our all-time favorite audiobook series. Whether you're already a fan or just curious what all the hype is about, join the conversation! If you're looking for your next great listen, here you go! BARD Mobile codes:
DCC - DB128135
Carl's doomsday scenario - DB128508
The Butcher's Masquerade - DB128526
The Dungeon Anarchist's Cookbook - DB128509
The Gate of the Feral Gods - DB128510
The Eye of the Bedlam Bride - DB128527
This Inevitable Ruin - DB128528
Audible: https://www.audible.com/series/Dungeon-Crawler-Carl-Audiobooks/B0937JMKYV?srsltid=AfmBOooIqkGRXQXuqWRMkHXzFuUbVvuXY86_oIX7fsR6VfB7w4ZUL5Xr
You can also get a FREE Trial of Audible: https://amzn.to/2wCA87F
#DungeonCrawlerCarl #Audiobooks #AudiobookClub #TheBlindLife #Blind #LowVision #BARDMobile #Audible #JeffHays

In this episode of the Accessible App Overview podcast series, we're taking a look at the new Companion app from Hadley. Available for both Android and iOS, the app gives you easy access to all of Hadley's services, including a convenient way to call and connect with their support team directly.
If you're already a fan of Hadley and the resources they provide, this is definitely an app you'll want to download.
Android app link: https://play.google.com/store/apps/details?id=org.hadleyhelps.Hadley&hl=en_US
iOS app link: https://apps.apple.com/us/app/hadley-helps/id6759167622
Hadley's website: https://hadleyhelps.org/
 

In this episode of the Accessible App Overview series, we're taking a look at the Cookie Voice Recipes app. This AI-powered app delivers accessible recipes and allows you to interact entirely through your voice. You can listen to ingredients and step-by-step instructions, ask questions along the way, and get the information you need completely hands-free.
App link: https://cookievoicerecipes.com/

I sat down with Tony Gabehart to discuss NVDA Coach, a free interactive training add-on for the NVDA screen reader. Designed for both beginners and experienced users, NVDA Coach helps people learn NVDA through guided lessons, keyboard commands, and hands-on practice. A fantastic resource for blind and visually impaired users, assistive technology trainers, and anyone wanting to improve their screen reader skills.
Link to download: https://tonygebhard.me/NVDACoach/ #NVDA #ScreenReader
#AssistiveTech #Accessibility #BlindTech #NVDACoach #InclusiveTechnology

In this episode of The Blind Life Podcast, I sit down with Joan Jaeger from Hadley to talk about the emotional side of vision loss, peer support, asking for help, and Hadley’s new “Coping and Adjusting Together” workshop series. An important conversation about mental health, low vision, blindness, and learning how to move forward after vision loss.
Visit Hadley to learn more:
► https://hadleyhelps.org/
#Blindness #LowVision #VisionLoss #AssistiveTechnology #MentalHealth #TheBlindLife #Hadley #BlindCommunity #DisabilityAwareness #Accessibility
 

What is ocular gene therapy, and could it treat inherited retinal diseases like Stargardt and Usher syndrome? In this episode, I’m joined by Dr. Jayashree Sahni of AAVantgarde to break down how gene therapy works, what clinical trials involve, and what patients can expect. We cut through the myths and explore the real potential of gene therapy for vision loss.
Contact AAVantgarde to learn more:
► www.aavantgarde.com
► clinicaltrials@aavantgarde.com
► patientadvocacy@aavantgarde.com
Get the full transcription here:
► https://docs.google.com/document/d/17yR24WkAZ2lHd1iCoKXtANoZ-vFd6XqU5K5d154kjgE/edit?usp=sharing
#GeneTherapy #Stargardts #RetinitisPigmentosa #Blindness #VisionLoss #AssistiveTechnology #ClinicalTrials #EyeHealth #AAVantgarde